By Alessandra Suuberg
This fall in the United States, the federal government allocated $1.8 billion to autism research, authorizing a five-year extension of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act. Continue reading
From Project Facilitator Kate Llufrio
In this blog, three co-researchers write about their experiences of taking part in a participatory study on how the lived experience of self-identified autistic people can help young autistic people growing up. Continue reading
The Neurodiversity Reader – Call for Submissions
Twenty years on – tracing the influence of the neurodiversity movement on theory and practice.
This is a call for submissions for an upcoming publication with Pavilion Press in association with PARC. Deadline for submissions of full drafts is August 30th 2019. Selected submissions will be taken forward for the published reader, whilst others will be published on the PARC website in a series of blogs (providing they do not contain material considered offensive by the editors).
Submissions should be between 1500 and 7000 words. Submissions do not have to be academic in nature and we would suggest to authors to write in an accessible style in order to be of value to a broad audience. Please send submissions to firstname.lastname@example.org Continue reading
Inside Out: autistic identities, participatory research and gender
2 day symposium: Thursday July 4 & Friday July 5 at the University of Kent
Day 1: Perspectives on participatory research practices, ethics and themes
Day 2: Perspectives on gender and creativity
Call for Contributions Continue reading
In November 2018, the charity Scottish Autism held a two-day conference in Glasgow, and alongside this, there was a series of fringe events convened by PARC. I organised and chaired a session on the theme of ‘Communication’ as part of the PARC Fringe. Continue reading
News / Events
PARC have agreed to host and manage the talks by autistic speakers at the Hub 1 Theatre as well as the ‘Autism Meets’ space at the Autism Show 2019 at all three venues (London 14th-15th June, Birmingham 21st-22nd June, and Manchester 28th-29th June). Continue reading
Due to unforeseen circumstances the planned series of PARC workshops in Birmingham have been cancelled. We will post any updates regarding future activities in the West Midlands and elsewhere.
Written by: Panda Mery
As so little information has been made available on 115 million euros Autism Innovative Medicine Studies-2-Trials (AIMS-2-Trials) research project, we suggested to Autistica to publish their project agreement. They didn’t. Using the access to information scheme of the Innovative Medicines Initiative 2 Joint Undertaking (IMI2 JU), we also requested a copy of the ‘Autism Innovative Medicine Studies-2 Trials (AlMS-2-Trials) grant agreement and its appendices’. After extending its deadline, the IMI2 JU sent us a partly redacted copy of the grant agreement. The redactions are explained in a cover letter. Continue reading
We regret to inform you that the first of the series of PARC workshops in Birmingham scheduled for the 18th September has been cancelled.
Written by: Panda Mery, Dinah Murray & Kabie Brook
The Autism Innovative Medicine Studies-2-Trials (AIMS-2-Trials) was launched as the largest ever grant given to autism research on June 18th. Two weeks ago, we wrote some questions about this project and the autistic representation and monitoring, if any. Dr James Cusack, Director of Science, Autistica wrote a response that answered only some of our questions. Some people commented on both these posts (below each). Continue reading