Connecting and networking online

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1st December 2020 

Following the postponement of the PARC conference and other face to face activity, we would like to encourage members of PARC, and those interested in attending PARC events, to comment or contact us with their areas of research or wider interest. We would like to put people in contact with others in a similar research and wider interest area. We are aware some people may already know each other, and this would support the aim of us connecting and networking online together. 

Our hope is these groups can meet, have discussions, encourage each other and possibly work together if the occasion arose (e.g. funding bids, research projects). Another possibility is for these groups to meet to discuss research in the form of a reading group. In the current climate, this is likely to be online, however in the future we hope to be able to convene these on a face to face basis.

We would like this to be as organic and natural as possible, so people can meet via the software or communicative means which is best for them. 

One of these groups that will be starting is a new Journal Club. This Journal Club will be hosted by the Tizard Centre and PARC in partnership, focusing on autism, participatory research and critical autism studies. This will take the form of a reading and discussion group. People who have attended PARC events in the past are welcome, as are people who have not attended before. Both academics and those not currently in academia are welcome. It will run for the first time on the 16th December 2020 at 4pm on Zoom. We hope to run it bimonthly. Further information will be posted about this first event soon. 

We hope we can bring people together who may not have met otherwise, and create communities which encourage their members, and develop creative and new ideas. 

Krysia Waldock and Damian Milton

Meanwhile, in America: From “Combating Autism” to “Autism CARES,” The Language Has Evolved. What About the Substance?

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By Alessandra Suuberg

This fall in the United States, the federal government allocated $1.8 billion to autism research, authorizing a five-year extension of the Autism Collaboration, Accountability, Research, Education and Support (CARES) Act[1]. Continue reading

The Neurodiversity Reader – Call for Submissions

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The Neurodiversity Reader – Call for Submissions
Twenty years on – tracing the influence of the neurodiversity movement on theory and practice.

This is a call for submissions for an upcoming publication with Pavilion Press in association with PARC. Deadline for submissions of full drafts is August 30th 2019. Selected submissions will be taken forward for the published reader, whilst others will be published on the PARC website in a series of blogs (providing they do not contain material considered offensive by the editors).

Submissions should be between 1500 and 7000 words. Submissions do not have to be academic in nature and we would suggest to authors to write in an accessible style in order to be of value to a broad audience. Please send submissions to damianmilton.sociology@yahoo.com Continue reading

Autism Innovative Medicine Studies-2-Trials project FAQ

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Written by: Panda Mery

As so little information has been made available on 115 million euros Autism Innovative Medicine Studies-2-Trials (AIMS-2-Trials) research project, we suggested to Autistica to publish their project agreement. They didn’t. Using the access to information scheme of the Innovative Medicines Initiative 2 Joint Undertaking (IMI2 JU), we also requested a copy of the ‘Autism Innovative Medicine Studies-2 Trials (AlMS-2-Trials) grant agreement and its appendices’. After extending its deadline, the IMI2 JU sent us a partly redacted copy of the grant agreement. The redactions are explained in a cover letter. Continue reading