PARC Autistic Fringe Scotland 8th & 9th November 2018

Events

Please click on the following link for a full schedule and information on the PARC Autistic Fringe Scotland 8th and 9th November 2018: PARC fringe

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Scottish Autism PARC Fringe Programme for 9th November

Events

We are pleased to announce the PARC Fringe Programme for 9th November. All Daytime PARC Fringe events will take place at The Grand Central Hotel, 99 Gordon Street, Glasgow G1 3SF

Details of the programme for 8th November coming soon. Continue reading

Autism Innovative Medicine Studies-2-Trials project FAQ

News

Written by: Panda Mery

As so little information has been made available on 115 million euros Autism Innovative Medicine Studies-2-Trials (AIMS-2-Trials) research project, we suggested to Autistica to publish their project agreement. They didn’t. Using the access to information scheme of the Innovative Medicines Initiative 2 Joint Undertaking (IMI2 JU), we also requested a copy of the ‘Autism Innovative Medicine Studies-2 Trials (AlMS-2-Trials) grant agreement and its appendices’. After extending its deadline, the IMI2 JU sent us a partly redacted copy of the grant agreement. The redactions are explained in a cover letter. Continue reading

Attempting to lift the veil of secrecy over AIMS-2

News

Written by: Panda Mery, Dinah Murray & Kabie Brook

The Autism Innovative Medicine Studies-2-Trials (AIMS-2-Trials) was launched as the largest ever grant given to autism research on June 18th. Two weeks ago, we wrote some questions about this project and the autistic representation and monitoring, if any. Dr James Cusack, Director of Science, Autistica wrote a response that answered only some of our questions. Some people commented on both these posts (below each). Continue reading

Response from Dr. James Cusack to concerns regarding Autistica’s involvement in AIMS-2

News

Thank you to Panda, Dinah and Kabie for their post and to Damian for the opportunity to post here. It’s really good to have a nuanced discussion about Autistica’s involvement in AIMS-2-TRIALS. We are taking on board a variety of views, some critical, some undecided and some very supportive. All of these views are valid and will inform how we move forward. Continue reading