Autism Ideas Café and Participatory Autism Research Symposium

News

Bishop Grosseteste University’s LORIC Autism Ideas Café and the Participatory Autism Research Collective (PARC) held a joint Research Symposium event 24th March 2021.

The event saw four participatory autism researchers showcase their research via short presentations and discussions with other researchers in front of an audience of over 70 attendees (many of whom were autistic) who comprised of individuals, allies, professionals and academics from around the world.

Recordings from the event can be found here:

Research topics discussed were:

“The Precariat” is a good name for a band: Autism, employment and the creative industries – Examining the experiences of autistic individuals as they transition from university into employment within the creative industries.

Parents’ stories involving autism diagnosis for their child – Exploring the advantages and disadvantages of having an autism “diagnosis”.

Autistic Teachers – The lived experiences of autistic professionals as they enter, manage, stay in, or exit the profession

Exploring classroom literature from an autistic viewpoint – How lenses of perception can impact on emotional interaction with a text. 

Dr Clare (Kate) Lawrence (Senior Lecturer in Teacher Development at BGU, East Midlands Convener for the Participatory Autism Research Collective (PARC) and L.C.C. Autism Champion) explained that she wasvery excited by our first event as part of the Participatory Autism Research Collective (PARC). This symposium showcased how BGU is embedding participatory autism research into our work through interesting and innovative projects that will further enrich and widen understanding of autism”.

This event was funded by the Research England Strategic Priorities Fund.

Autism Journal Club – Krysia Waldock 20th April 2021

Events

20th April 2021 at 16.00-17.00 (GMT)

Krysia Waldock will be presenting her recent paper ‘An Exploratory Study of Attitudes toward Autism Amongst Church-Going Christians in the South East of England, United Kingdom’

https://www.tandfonline.com/doi/full/10.1080/23312521.2020.1776667

Following a short presentation, there will be an opportunity for discussion.

Online via Zoom. The session will be video-recorded and uploaded on the Tizard Centre YouTube channel

To register please go to: https://us02web.zoom.us/webinar/register/WN_myoeP89XRWaowQyMoeHe3w

Participatory Autism Research Symposium – 24th March 2021

Events

Bishop Grosseteste University’s LORIC Autism Ideas Café and the Participatory Autism Research Collective (PARC) are pleased to announce details of their joint event to be held on 24th March 2021.

The Autism Ideas café is a regular, informal opportunity for anyone with an interest in autism to meet and share ideas. The event, which has been running (in-person and then online) since April 2019, has provided a rare opportunity for people with an interest in autism from a number of different perspectives to meet and have discussions. The events regularly attract attendees who are autistic; who are parents or carers of people with autism; or who are professionals or academics with an interest in the subject. This approach provides a unique melting pot of perspectives.

“I find the ideas cafe a unique and positive approach to bringing different members of society together. In my work within education and learning, I have often wondered how we bring together members of society that may have a range of views and the potential to create meaningful dialogue and action.” – An Autism Café attendee, and tutor on the SENDI programme at BGU

The Participatory Autism Research Collective (PARC) was set up to bring autistic people, including scholars and activists, together with early career researchers and practitioners who work with autistic people. Their aim is to build a community network where those who wish to see more significant involvement of autistic people in autism research can share knowledge and expertise.

This ‘symposium’ will showcase four autism research projects undertaken by participatory autism researchers at BGU. Participatory autism research is defined as research where members of the autistic community have control over the research agenda and the analysis of, and reflection on, the data that is generated. It embeds the values of the draft framework for inclusive autism research (Chown et al., 2017 ) including that autism research should be aimed at improving the lives of autistic people.

Each participant in the symposium will introduce an element of their current research and this will then be discussed in the group. Each section of the symposium will last for approximately 15 minutes, with the whole segment lasting one hour. Comments by audience members will not be supported during the symposium, but there will be an opportunity for discussions between delegates after this segment of the event.

Research topics to be covered are:

“The Precariat” is a good name for a band: Autism, employment and the creative industries – Examining the experiences of autistic individuals as they transition from university into employment within the creative industries.

Parents’ stories involving autism diagnosis for their child – Exploring the advantages and disadvantages of having an autism “diagnosis”.

Autistic Teachers – The lived experiences of autistic professionals as they enter, manage, stay in, or exit the profession

Exploring classroom literature from an autistic viewpoint – How lenses of perception can impact on emotional interaction with a text. Published article: Lawrence, C., *, C., Collyer, E., & Poulson, M. (2020). “Howling at the scrabble-board”: exploring classroom literature from an autistic viewpoint. English in Education, 1-13.

Event organiser, Dr Clare (Kate) Lawrence (Senior Lecturer in Teacher Development at BGU, East Midlands Convener for the Participatory Autism Research Collective (PARC) and L.C.C. Autism Champion) explained that she isvery excited by our first event as part of the Participatory Autism Research Collective (PARC). This symposium showcases how BGU is embedding participatory autism research into our work through interesting and innovative projects that will further enrich and widen understanding of autism”.

To book a place at this FREE event, please register here.

This event is funded by the Research England Strategic Priorities Fund.

Autism Journal Club – Dr. Catherine Crompton

Events

4th March 2021 at 16.00-17.00 (GMT) Online via Zoom

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Dr Catherine Crompton will be presenting on her recent paper ‘The effects of neurotype-matching on self and observer rated rapport.’ You can access the paper here: https://www.frontiersin.org/…/fpsyg.2020.586171/full

Following a short presentation, there will be an opportunity for discussion.

The session will be video-recorded and uploaded on the Tizard Centre YouTube channel

To register please go to: https://us02web.zoom.us/…/reg…/WN_XVVZ6eSSR1qSDDjLZNJhHQ

Future date! Tuesday 20th April 2021 at 4pm

Krysia Waldock will be presenting her paper: An exploratory study of attitudes towards autism amongst church-going Christians in four Protestant Churches in the South East of England, United Kingdom

More details, including how to register, available in March

Autism Online Journal Club Update 9.12.20

Events

Due to very high interest in the Online Journal Club on the 16th December, we have made a change to the registration and the Zoom link. Please do not try to access the Journal Club by the old Zoom link. 

We ask that those who are interested in attending the session please email Dr Jill Bradshaw at J.Bradshaw@kent.ac.uk . You will then receive the new Zoom link and details on how to join the session via email. 

We apologise for this change and look forward to seeing those who attend on the 16th December. 

Krysia Waldock

Autism Online Journal Club

Events

Date and time: 16th December 2020, 16:00-17:00 London time

This is our first Autism Online Journal Club. Our aim is to provide a platform to showcase good autism research.

Our first presentation will be by Dr Damian Milton.  Damian works as a part-time lecturer at the University of Kent.  He has been teaching in the further/ higher education sectors since 2000 in a range of subject areas relating to autism and learning disabilities. 

Damian will be presenting a co-authored paper on ‘A critical reflection on the development of Participatory Autism Research Collective (PARC)’. Following a short presentation, there will be an opportunity for discussion.

  1. How can we as a research community build small steps toward participation, yet at the same time avoid tokenistic gestures?
  2. How do we help each other with the emotional labour of being an autistic researcher researching autism (taking into account how we are often written about)?
  3. How can we access funding and work with allies?
  4. What are the potential benefits of being an ‘outsider researcher’?

People will be able to take part in discussions verbally or using the chat function.

Emerald has provided the paper in free access until 31st December 2020:

https://www.emerald.com/insight/content/doi/10.1108/TLDR-09-2018-0029/full/html

Free attendance.  Please click on the link to join

https://us02web.zoom.us/j/85300953489?pwd=bGpnM01qc0RXK1FMMTArYjZmSkFlUT09

Meeting ID: 853 0095 3489  Passcode: 294214

For more information please email J.Bradshaw@kent.ac.uk

Connecting and networking online

News

1st December 2020 

Following the postponement of the PARC conference and other face to face activity, we would like to encourage members of PARC, and those interested in attending PARC events, to comment or contact us with their areas of research or wider interest. We would like to put people in contact with others in a similar research and wider interest area. We are aware some people may already know each other, and this would support the aim of us connecting and networking online together. 

Our hope is these groups can meet, have discussions, encourage each other and possibly work together if the occasion arose (e.g. funding bids, research projects). Another possibility is for these groups to meet to discuss research in the form of a reading group. In the current climate, this is likely to be online, however in the future we hope to be able to convene these on a face to face basis.

We would like this to be as organic and natural as possible, so people can meet via the software or communicative means which is best for them. 

One of these groups that will be starting is a new Journal Club. This Journal Club will be hosted by the Tizard Centre and PARC in partnership, focusing on autism, participatory research and critical autism studies. This will take the form of a reading and discussion group. People who have attended PARC events in the past are welcome, as are people who have not attended before. Both academics and those not currently in academia are welcome. It will run for the first time on the 16th December 2020 at 4pm on Zoom. We hope to run it bimonthly. Further information will be posted about this first event soon. 

We hope we can bring people together who may not have met otherwise, and create communities which encourage their members, and develop creative and new ideas. 

Krysia Waldock and Damian Milton

Postponement of PARC conference / encouragement of online activity

Events

We are sorry to announce that we will be postponing the PARC Critical Autism Studies Conference that was scheduled for June 2nd 2020, probably until into the new year. With the cancellation and postponement of face-to-face events this year, we would like to encourage the PARC network to think creatively about sharing their ideas and work online.