Sharing Participatory Autism Research in the East Midlands – online event 13th October 2021 10-12 BST


About this event

The Lincolnshire Open Research and Innovation Centre at Bishop Grosseteste University are pleased to collaborate with the Participatory Autism Research Collective for a second online research symposium.

Participatory autism research is defined as research where members of the autistic community have control over the research agenda and the analysis of, and reflection on, the data that is generated. It embeds the values of the draft framework for inclusive autism research (Chown et al., 2017), including that autism research should be aimed at improving the lives of autistic people.

Each participant in the symposium is a member of the BGU community and will introduce an element of their current research and which will then be discussed by the group. Comment by audience members will not be supported during the presentations, however there will be an opportunity for delegates to discuss the event in groups afterwards.


Autistic women and university – Sophie, a BGU alumnus.This participatory PhD research focuses on autistic women’s experiences of university, with specific regard to wellbeing. Participants expressed barriers to university and wanted universities to be more inclusive. As part of this project participants created creative pieces such as poems or artwork. Sophie is particularly interested in the use of creative methods as a research tool.

Using the short film ‘Broken’ to explore autism in the classroom – John, a member of BGU academic staff (the film’s co-creator, ‘Fauxparl’, is a BGU alumnus).The short film Broken (Rimmer, 2020) is an artistic impression that aims to articulate autistic pupil dysfluency from an autistic viewpoint. The film has been used a tool to support trainee teachers’ understanding of fluency issues in autistic pupils in the mainstream classroom. The film (6 minutes) will be shown as part of the presentation.

Representation of Black autistic characters in picture books – Clare, a BGU associate, is undertaking a PhD in children’s literature at Cambridge University. She is supporting three members of BGU’s academic staff with this project.In 1990, Dr. Rudine Sims Bishop published an essay outlining the importance of children’s books as both ‘windows’ and ‘mirrors’: books that are windows enable children to learn about the lives of others, and those that are mirrors support children to see themselves reflected. This project looks at the representation of Black autistic children in picture books – a hugely under-represented demographic. It critiques this representation both from a Black and from an autistic perspective and investigates how these books work both as windows and mirrors.

Bishop Grosseteste University’s ARCH project – Helen, BGU’s Student Engagement Facilitator.BGU has this year started an Autism Resources and Community Hub (ARCH), which aspires to be a one-stop starting point for all members of the BGU autism community (autistic students and staff, family members, friends and allies) to access information about autism at BGU. This community-based, exploratory work aims to build a positive resource that emerges from our autistic community. The initial pages can be found here:

This event will be hosted using Microsoft Teams, as as such the email addresses of attendees may be visible during and after this event. By registering for this event you are agreeing to these terms.

To register for the event click on the following link:

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